Samm
He wishes I was dead.
My child asked to go to heaven last night. He said he didn't want to be alive anymore. He's three so he doesn't fully understand the...
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WALKING WITH COOPY
The story of an incredibly brave little boy, determined to defy the odds and take steps of his own someday.
Samm
- Dec 2, 2022
- 2 min
Turning 4.
Cooper turns 4 in less than a month. Like any normal toddler, he's beyond excited for his birthday and party. He can't wait to go to...
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Samm
- Jul 11, 2022
- 3 min
In his dreams.
As I was watching his little arms and legs move, his hands twitch and fingers wiggle, I wondered if maybe he was dreaming.
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Samm
- May 20, 2022
- 4 min
Work in Progress.
I don't want to waste anymore time thinking about things that might happen. I need to enjoy my family and my life as it is right now.
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Samm
- Mar 23, 2022
- 3 min
A Letter to Myself, on Diagnosis Day.
Finally, don’t spend the next few years being angry. Don’t waste your days thinking about what could of or should of been.
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Samm
- Mar 1, 2022
- 4 min
Stupid SMA.
I’ve thought about him growing up and getting married and becoming a dad. But I’d never thought of this.
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Samm
- Oct 29, 2021
- 2 min
Momma, will you teach me how to walk?
I had to tell my two year old that I can't teach him how to walk. That I can't fix his legs.
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Samm
- Oct 15, 2021
- 4 min
We're Lifers.
You see, we're lifers. This boy and I. Once a week. Every week. Forever.
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Samm
- Jun 18, 2021
- 3 min
Our Newest Challenge.
Cooper is starting to become very aware of his differences and it's heartbreaking.
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Samm
- May 19, 2021
- 4 min
Hoping for Someday.
I feel like our world is just standing still. And I’m just going through the motions of life right now.
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Samm
- Apr 7, 2021
- 3 min
Just like me.
He yelled "Look Mommy! A wheelchair! Just like me and my big wheelchair!"
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Samm
- Oct 31, 2020
- 3 min
I have SMA.
But every now and then, something happens or a thought crosses my mind that hits me like a wave.
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Samm
- Oct 7, 2020
- 2 min
Coopy’s Birthday SMA Awareness Fundraiser!
For the rest of the month we are going to be selling these shirts as a preorder and donating the money to two different organizations.
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Samm
- Sep 23, 2020
- 3 min
Six months down.
Six months ago today our lives began to revolve around SMA... And although I hate this disease with every fiber of my being, I'm thankful...
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Samm
- Aug 16, 2020
- 3 min
Focus on today.
Because if I'm being honest, I could be sad all the time. I could spend the rest of my life being sad. Being mad. Being bitter.
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Samm
- Aug 16, 2020
- 2 min
On the Move.
It has been incredible to watch him gain some sort of independence over the last couple weeks.
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Samm
- Jun 23, 2020
- 3 min
Sweet Maisey Grace
My sweet Maisey girl. There's not a single person in the world like my girl. She's brilliant, hilarious, sassy, loving, gentle,...
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Samm
- May 15, 2020
- 3 min
Going to change the world.
But I also can't help but grieve the childhood I thought he'd have. The childhood I thought I'd get to experience with him.
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Samm
- May 15, 2020
- 3 min
Strongest boy in the world.
Life is crazy right now. But it's also simple and weirdly calm. Cooper received his life saving, miraculous treatment on Wednesday, April 8.
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Samm
- Mar 28, 2020
- 3 min
What is Spinal Muscular Atrophy?
Spinal Muscular Atrophy is the number one genetic cause of death for infants. Children can only get SMA if both parents are carriers.
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Samm
- Mar 27, 2020
- 4 min
Start getting better.
I couldn't help but worry about having to watch him become weaker and weaker until he died.
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Samm
- Mar 27, 2020
- 2 min
We owe him everything.
All it took was a doctor who cared enough to listen
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Samm
- Mar 26, 2020
- 3 min
I was crushed.
We didn't have that test done yet. That wasn't part of our last blood draw. How would they know? They can't know that, right?
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Samm
- Mar 26, 2020
- 2 min
It was nothing.
It was quite the wild week. But it was nothing compared to what was in store for us.
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Samm
- Mar 10, 2020
- 4 min
Treat the Symptoms.
I'm aware that we may never be able to fix his issues. But the neurologist said something on Wednesday that I just can't stop thinking about
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Samm
- Mar 3, 2020
- 2 min
Get Some Answers.
We go to the neurologist tomorrow. I had planned on canceling this appointment because I don't really have a lot of faith in this doctor....
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Samm
- Feb 7, 2020
- 3 min
It's a Rollercoaster
Some days I'm hopeful, others I'm terrified.
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Samm
- Jan 31, 2020
- 3 min
Within Reach.
An arachnoid cyst. A cyst that he said he believes very well could be causing all of our issues!
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Samm
- Jan 31, 2020
- 2 min
On the Right Track.
Suddenly I was giving his medical history and setting up an appointment for a second opinion. It was a huge weight off my shoulders.
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Samm
- Jan 29, 2020
- 4 min
I won't stop.
"The brain scan looks normal. The spine. Yeah, that looks normal too. Except they did find a cyst..."
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Samm
- Jan 29, 2020
- 3 min
We Wait.
He said the absence of those reflexes told him there was possibly something going on in his spine.
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Samm
- Jan 26, 2020
- 3 min
Hopefully.
Whew. Nothing serious. He just needs a little extra help.
Hopefully.
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