Get Some Answers.

We go to the neurologist tomorrow.

I had planned on canceling this appointment because I don't really have a lot of faith in this doctor. He's the one who told us that if all of Cooper's tests in January come back clear, "maybe he'll grow out of it." And I obviously don't know protocol after ordering a bunch of tests but it seems weird to me that this is the first time we're seeing or speaking to him after the MRI and bloodwork. A month and a half later. And honestly, I'm still salty about the way I was given the results about his MRI as well as the fact that nobody ever called me with any of the lab results.

Unfortunately though, we still don't have an appointment with neuromuscular at U of M. In fact, we were told we won't even be getting an appointment in March. I've put in a request to be sent somewhere else but for now, we're still stuck waiting. So we decided it was probably best to keep the neurologist appointment to make sure he's still being seen by someone fairly regularly.

But I'm nervous. We haven't seen this doctor since December and I feel like that was a lifetime ago. The last time we saw him we still had hope that this was something simple. Now we know there's definitely something wrong and I'm just hoping it's something we can treat to give him a normal life.

Last time we were there I didn't ask many questions. I was just along for the ride and eager to hear everything he had to say. But this time I have lots of questions. And I want answers. I want to know what needs to be done next to get us closer to figuring all of this out. I want to know that they're going to do whatever it takes to help our little boy get better.

I'm so sick of not ever getting anywhere with doctors. I'm just hoping that this time we actually get some answers.