Things have been fairly quiet appointment wise lately. Since putting Cooper's therapy on hold, we no longer have weekly appointments scheduled. It's honestly been quite the relief although I wish we were actively working to get him better.
We had a urologist appointment scheduled last week but unfortunately the stomach bug hit both kids the night before our appointment and we had to reschedule. So we have to wait another week for that. I still haven't heard from neuromuscular despite contacting the neurosurgeon's office more than once to try to light a fire under whoever is dropping the ball in this situation.
After our stomach bug issue, we ended up taking Coop to his pediatrician because he'd had some congestion for a few days and it just wasn't getting better. We discussed our specialist appointments with her and caught her up on everything else that had been going on since we last saw her in January. She listened to his breathing and although his lungs sounded clear she did hear some wheezing. He usually ends up with a wheeze every time he gets a cold. He also ends up with a cough that lingers forever. So she reluctantly (because she felt bad piling more on, not because it isn't necessary) referred us to a pulmonologist to see if we can figure out how to get rid of his cough for good. I've heard that kiddos with low tone sometimes have trouble clearing their congestion because they aren't able to cough as hard as they need to. She confirmed this and hopes pulmonary will be able to help us clear him out.
That appointment has been made but it's a month away. Seems to be a theme for us. After almost two weeks of back and forth between different hospitals and offices, we have our second MRI scheduled. For the middle of March. We just can't seem to win when scheduling things lately.
Meanwhile, Coopy isn't progressing, at all. It's like his little body is frozen in time. Stuck at 8 months old. His little brain is advancing though. He's so incredibly smart. He picks on his sister. He yells at the dogs. He says please and thank you without being told. He constantly tells us he loves us which is quite possibly the sweetest thing I've ever heard. He lets us know when he's annoyed or mad. Those are the things that keep me going and give me hope. Hope that one day he'll be able to run around with his sister and cousins. Hope that one day he won't always be the kid who can't join in with the others. Hope that one day he'll be able to live a normal life.
One day.
You do such a wonderful job of expressing yourself Samm & you are such a great asset to your boy. He will get through all this ok- I feel that to the bottom of my heart. Thanks for the updates and will say lots and lots of prayers for sweet Cooper.