It took me a full day to wrap my head around the fact that nothing was out of the ordinary on his MRI. Except for that cyst. I felt guilty that I was upset about it being normal. But I was also feeling a bit of relief because he's normal. Thank God.
But the relief didn't last long. And deep down I know he isn't truly normal. It isn't normal for a 15 month old to be unable to bear weight on his legs or even sit himself up. And I needed to know more about that cyst. I needed to know how this person who said it was normal knew it was normal. At this point I didn't even know where it was on his spine. He can't use his legs. How do we know it's not pushing on nerves or doing something to his spinal cord? Why didn't I get a better explanation??
I spent the weekend researching pediatric neurosurgeons. I needed another opinion from somebody who would know more about that cyst. I joined Facebook groups looking for advice and trying to find parents with children whose symptoms resembled Coop's. The best I found near us was in Cincinnati. I was fully prepared to call them Monday morning.
But as I was updating Cody's aunt on the results and all of my concerns, she offered to connect us to a neurosurgeon she was familiar with. YES. Suddenly I was giving his medical history and setting up an appointment for a second opinion. It was a huge weight off my shoulders.
The same day our appointment with the neurosurgeon was finalized, we had Cooper's 15 month check up with his pediatrician. The first thing she said as she walked in the room was, "I got his MRI results. So do they think the cyst is causing all of this?" Haha, NOPE. I told her about my phone call with neurology and she couldn't believe it. She agreed getting a second opinion was absolutely the next step. I felt validated. For the first time I finally felt like we were on the right track.
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